I cannot express how much your love and support have meant to me since I started this wild ride with Glioblastoma over 20 months ago.
I read this last night: "The most common form of malignant brain cancer—called a glioblastoma—is notoriously wily and considered the deadliest human cancer." This is what I was told in those early days (and is true in the majority of cases).
As you may remember 20 months ago, I was rescued off the side of a mountain after experiencing a seizure and rushed to the hospital where I would undergo brain surgery two days later. Diagnosis: Glioblastoma Grade 4. Prognosis: terminal. Life expectancy: 10-15 months. I was stamped with an expiration date. I believed them.
My world turned upside down, and even though I proceeded with all the standard of care treatments available to try to extend my life, I was preparing to die. My life revolved around planning my death. I began to let go—of everything—possessions, fear, life as I knew it. I prepared my family for life in my absence.
Something was happening along the way though. I realized I had forgotten to live. I still love the mountains, the sunrise, trees, the water, wild animals, the desert and all of nature, and I longed to be alive amongst the wild forces. I began to build back my strength and on the one-year anniversary of the day I was rescued off that mountain I went back and reached that peak beaming with pride, filled with the greatest joy I had known in a year.
That was the day I made the best decision of my dying life:
I’ve spent the last year dying. I will spend the next year living.
I have made so many changes in my life since this all began, but the best change was my perspective! Even though I am left with some deficits, I will continue to seek ways of meeting life from where I am.
Thank you all so much for lending me your strength, prayers, energy, and love, especially when I was in my darkest days. I’ve discovered LIFE, and it is filled with magical moments when you allow yourself to experience them.
Now we need new treatment or a cure for this brutal disease, so no one has to face this in the future. Head For The Cure is one way for all of us to help. They partner with organizations that are constantly researching and working toward that mission. I am hoping you will join me in supporting the work they do.
I am blessed beyond words just to BE--for however long my journey continues.
With gratitude ~~