Thank you for visiting our team and helping us to reach my fundraising goal!
We are joining the fight against brain cancer by participating in Head for the Cure Des Moines on May 19th 2019. Head for the Cure is dedicated to raising funds and awareness for brain cancer research.
We run for Alexandria. She was diagnosed with DIPG February 2018 and passed away 2 August 2018 at the age of 5 years old. She was the spunkiest, sweetest and most beautiful child.
We celebrate her life by raising awareness for DIPG and all forms of childhood cancer.
DIPG, or diffuse intrinsic pontine glioma, is a type of brain tumor found in an area of the brainstem know as the pons. The name diffuse intrinsic pontine glioma describes how the tumor grows, where it is found, and what kinds of cells give rise to the tumor.
DIPG primarily affects children, with most diagnoses occurring between 5 and 7 years of age. DIPG makes up 10-15% of all brain tumors in children, with about 150-300 new diagnoses per year in the United States. Unlike many other pediatric cancers, there has been little progress in improving treatments and cure rates for DIPG over the last few decades. Unfortunately, fewer than 10% of children with DIPG survive two years from diagnosis.
Pediatric Cancer is Extremely Underfunded
The National Cancer Institute allots only 4 percent of its budget for pediatric cancer research, and funding for other pediatric diseases is also scarce.
Pediatric Cancer Treatments Aren’t a Focus
Since 1990, fewer than 10 drugs have been developed to treat pediatric cancer, compared to more than 200 for adults.