Welcome to Nidia's Personal Page
Thank you for visiting my personal page and helping me to reach my fundraising goal in honor of my mom, Monique.
I am joining the fight against brain cancer by participating in UT Go Grey 5K Salt Lake City event on August 22nd, 2020 hosted by Head for the Cure and Utah Brain Tumor Alliance. Both organizations are dedicated to raising funds and awareness for brain cancer research.
My mom fought her brain tumor and all the deficits that came along with it, for 42 long years. She was the bravest and strongest person I've ever known, my hero. She was fully incapacitated for almost half of those years, 19 years.
Because her brain tumor was on the brain stem at the skull base, only a 20% resection was possible with her first 2 craniotomies. Her 3rd surgery, and last one, increased resection was possible because of more thorough scans. But it came with additional setbacks. She had a stroke immediately after surgery and hydrocephalus a week after that, necessitating a shunt to be placed to remove fluid. A tracheotomy became necessary because of continued respiratory dependency on oxygen. She was completely incapacitated and communication was limited. We had to learn to lip-read, but it was difficult for her to form words because of the fluid pushed up from the trache. It was extremely frustrating and exhausting for her. We ended up resorting to yes and no blinks.
We had begun working with her with a new program called "Eagle Eyes" that utilizes eyes to track a mouse.
Each year, over 80,000 people in the United States are diagnosed with a primary or metastatic brain tumor. More than 120 types of brain tumors exist, making effective treatment complicated. Cutting edge research is needed as we continue to make strides in this fight.
Head for the Cure works to inspire hope for the community of brain cancer patients, their families, friends, caregivers and other supporters, while celebrating their courage, spirit and energy. Every Head for the Cure event marks a day of celebration where those diagnosed with brain cancer are honored and celebrated by their friends and families, those who have lost their battles are remembered, and we are all inspired to carry on the fight.
Funds raised by Head for the Cure support the Huntsman Cancer Institute, Musella Foundation and the Brain Tumor Trials Collaborative, a network of medical centers with the expertise and the desire to participate in state-of-the-art clinical trials investigating new treatments for malignant brain tumors.
Please consider making a donation today to help me reach my goal and to help Head for the Cure defeat brain cancer, step by step!
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