Diane Reed - My Personal Page
Good morning 2019 Dudes & Dames 4 Brains Partners!
May, 2019 marks the 7th year anniversary of my journey into the unknown world that IS brain cancer. So much has happened in that time period! Days filled with ups, downs, celebrations, and grief that comes with life. I am so grateful to each and every one of you for standing with us, walking with us, running with us... you just have no idea. It feels so beautiful, being remembered.
My tumor has remained unremarkable. For some, being “unremarkable” is a tragedy. For me, unremarkable suits me just fine. I will happily accept years of unremarkable over the obvious opposite. Thank you, God, for second chances... or in my case any chance at all.
i signed up for a trial — finally! I am so happy to finally have an opportunity to help in any way I can with the advancement of treatment options, early detection, moving rapidly into the realm of no more brain surgery for me and others with this diagnosis. I have only had one “trial” process thus far as my role involves blood draws and urinalysis in coordination with MRI results every six months. Dr. Groves, et. al, believe they have uncovered a method to “map” the status of malignant brain cells by correlating the presence of certain genetic mutations within the blood/urine to establish whether there exist ANY malignancies within those cells. Clear as mud, right? Dr. Groves says it so much better than me. He makes sense of the incomprehensible— which is fine by me. In layman’s terms, it means that he can look at the results of lab work and the MRI imaging to identify whether there is active cancer cells in my brain — e.g., no biopsies, no brain invasion. As I said, this is a trial Dr. Groves is conducting that, if found conclusive over time, will help others like me who would otherwise have to have invasive brain surgery to remove and test tissue. We like no surgery. Very much.
I was was interviewed on camera earlier this year for a documentary discussing brain malignancies and the impact surgery and treatment has on the lives of those battling this disease and those who provide support. If you have walked or donated in the past, thank you. God bless you. I hope that when the film is released you will be provided with a link in order to view when you have time. I was happy to speak to others about my experience and what the future holds for me and my family and friends.
To each of you who provide love, support, donations, time, energy, effort, I thank you. Always. The saying goes “It takes a village” when raising a child I would submit that my village has been buoyed by you. You make life beautiful.
Have a great Spring Break, 2019, and see you on March 31st at the Domain!
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